Hi all, and time for another update from the estranged admin!
Well, what can I say? I'm well and truly fed up of 'recovering' now especially when I keep getting setbacks just when I think I'm doing better!
A few weeks ago my INR (blood clotting factor) had dropped too low, they want me around 2.5 and I had dropped to 1.4 - which was making my heart struggle again and causing me to be extremely tired and weak. My warfarin dose has been increased and I was instructed to not eat any green veg for a few days and to have a couple of glasses of wine that evening (which boosts the warfarin effect). That probably doesn't sound like such a bad thing but the wine just made me emotional and I got really blue for a few days there. I'm so fed up of having to spend so long just resting.
In good news my arms don't get quite so tired as quickly as they were, so that means I can start catching up here a bit more as well as more or less staying on top of my workload.
Last week I had another set back as I awoke on Tuesday with a pulse rate of 95 (most days I'm around 55-65) which rapidly rose to 149 on taking the short slow walk from my bed to my desk in the next room. All I could do was dial 999 as Rich was at work and my mum on holiday (it took a lot of convincing to get her to go, she'd planned it ages ago and then didn't want to leave me!). The paramedic turned up within minutes and was brilliant, doing all sorts of tests and speaking with my doctor for me. Thankfully I didn't go back to hospital but he did advise me to see my GP which I duly did.
All my GP tells me really is that it's going to take time and that my body has been through a very, very serious medical event and that I need to reign myself in and let others do more for me. He says 4-6 months as a minimum before I feel anything resembling normal and that although I have age on my side it also works against me as I'll have higher expectations of what I want to do (whereas an older person will tend to be less active and therefore get less frustrated as they are used to being slower/less able).
In good news, my INR went up to 2.0 last week which was better but not quite what they want. So, another increase in my dose - which I find leaves me cold and tired as well as lacking in concentration by afternoon.
Tomorrow I'm off to see the nurse again to check my INR and I'm also going to talk with her about a plan I have to manage my time a bit better - hopefully my body will cope alright if I have a few hours break in the middle of the day rather than having to keep stopping for shorter breaks at random times when my body feels it needs it. I'm hoping some kind of routine will do me good.
To give a sense of just how little I can do besides a couple of hours at my desk each day, this week's goal is to be able to make the bed each morning (not change the sheets, just pulling them up tidy). Next week I aim to manage 5 mins of washing up each day as well as making the bed. In general I do manage to cook dinner with help from Rich. Where possible I prep little bits of it throughout the day rather than standing around for long spells of cooking.
I do miss my giant salads and huge piles of green veg. Most of the lovely low calorie veg is high vitamin K so I'm finding myself having lots of baked beans, sweetcorn, tomatoes and plenty of fruit - which is annoying because of the calories! I haven't fasted in 2 months now but over the coming weeks will try to get back into it. It's just so hard when all you can do is sit around, I get fed up of the telly but my arms can't handle a PS3 controller for long or doing any crafts so I find myself just getting up and having a biscuit as 'something' to do. Really bad idea, I know. I'm about 6lbs up on pre-house-move. It doesn't help that everyone keeps bringing me cake. I need to get my control back, but it seems my only pleasure at the moment is eating something nice.
What other news? Well, Rich got a seasonal job at a local Haven park, so at least that's one less thing to worry about. He's had some interviews and has another next week and feels confident about them given the roles and his experience.
Feebs is still with us and powering on like a furry little trooper! Her tumour although much bigger than before we moved doesn't seem to be growing too quickly nor impeding her beyond the affect it has on her right eye. She seems happy enough. We've currently got the landscapers in sorting out our back garden (something we had set money aside for as a proviso of buying this place, I hated the tiered garden and the state it was in) so hopefully in a couple of weeks it'll be safe & secure to let her out. I hope she's still with us to enjoy it for a little while.
Anyway, it's about time for me to take my 3 hour break now - I've been sort of trying out the new routine for a few days to see how I get on

Hope to start to catch up with my numerous PMs and requests later on.
Thanks again for bearing with me. This really is quite an experience, not at all what I expected. Part of me wants to write a story and send it to a magazine to raise awareness of this invisible illness. "My cat got cancer, I got a second job and moved house... all the while with an undiagnosed pulmonary embolism!". That's magazine gold right?!