The FastDay Forum

Hello all! Am in need of hugs and good vibes I think. I seem to be going downhill and am as bad now as I was a year and a half ago. I am literally forcing myself to (a) do 10 mins yoga every morning (used to be able to do 40-60 mins so I'm not pushing myself ) and (b) walk "the girls". My poor parents do walk them when I absolutely can't but I've now decided to "force myself" to do these two things every day. I find fasting easy (in fact easier than having to eat and worry about what to eat etc. it gets rid of comfort eating too...hence I'm doing EOD fasting at the moment)

However, I'm spending a lot of time in bed at the moment or lying on the sofa watching tv. At least I can watch tv and read...but it does take its toll. This week, to top it all, I've got my first assessment for benefits. Oh boy!

Don't mean to sound such an old mizz...just needed to express my fedupness (made up word but ideal!)

Hugs to you all

TiredBean

Hi Bean, sounds like your course could be causing your crash. we are all prone to "pushing" past our limits. and your doctors and course folks encouraging you to do just that. I know you want to do as much as possible. I,too, push every day just fix a meal and try to clean my house.

actually the way you are feeling right now, may be an advantage in your assessment. you are the living embodiment of this illness when you keep trying to do more than your body will do at the moment.

I like fedupness, that is a great word! pretty much expresses how this illness makes you feel much of the time. I don't think you are being an old mizz, just telling the truth. hope some of this made sense, my brain isn't happy today. just discovered that steroids cause insomnia.

CandaceMarie, so sorry your brain fog is bad right now. Hope the fog lifts soon.

Hi Lee, hope you are having a good day.

hugs to all Phyllis

Thanks Phyllis x
Thinking of you Beany and commiserating with how you feel x
When exactly is yr assessment,day and time,so we can send some specially good vibes yr way xx

Thanks Phyllis and Candice!

I have my assessment tomorrow afternoon. Before that is one of my regular visits to the doc's. Feel nervous just writing this. Yes, tomorrow is going to be a looooong day!

Bean

Thinking of you today Bean and sending you lots of love and good vibes x

Lighting a candle for you@nursebean
Will be thinking of you big time tomoz pm and sending out a prayer for a great outcome
BigHugs xx

Sorry I was a bit premature Bean but will still be thinking of you tomorrow and keeping everything crossed for a good outcome. x

Oh thank you so much xx Must admit I'm getting rather nervous now

Bean

Hi bean, sending you good thoughts today. hugs Phyllis

I hope you're OK @nursebean? Hugs for you today.

Thank you for your best wishes! Well, I've had my assessment. D'you know, I had to wait an hour and ten mins before I was asked in. The assessor didn't have anyone with her in that time, she was apparently just writing up the previous customer's notes and yet when I was in there she typed my notes as she went along. People just don't realise how hard it is to sit upright when you have ME.

The actual assessment was pretty much a waste of time I thought, especially the part where she checked my limbs (I had to touch my toes etc...why?!). It only took 20 mins, so if I'd gone in on time it wouldn't have bean so bad!

Anyway, Bean has emerged exhausted but in one piece

Bean

Ps have any of you had to endure these assessments?

I do hope you get a positive outcome from this @nursebean. You could perhaps write and tell them what you've told us here...about the waiting being hard? I have never had to experience this, but someone might have.....hoping you're OK?
Auri XX

Yes @Auriga I am tempted to write to someone about it because, you know, it really was too long to be kept waiting (for someone to write up their notes)

Bean

Glad it's over@nursebean
Fingers x'd now for you
How totally inconsiderate and uncaring of them to keep you waiting so long x x x

Hi everyone, I'm sorry I've been missing in action the past week or so. I have been dealing with a lot of pain and just had my physical therapy evaluation this morning. apparently I have a problem with the T4, and its causing pain, plus I seem to have "dislocated" a rib in my latest fall. then just to make life more interesting our one bathroom developed major plumbing problems.

Bean, it's terrible that you were kept waiting so long. it would be nice if they understood how difficult appointments and such are for us. but then again, I think their job is to NOT understand that, and think if you can get out of bed at all, you are fine. hope you are having a better day.

CandiceMarie, I need to apologize for misspelling your name. my daughter had a friend that spelled it Candace and my fingers apparently remember that. Hope you are doing well, and the fog is lifting.

how is everyone doing? I haven't fasted this week, but have been so stressed I go from not eating to comfort eating. so far maintaining the weight and not gaining (fingers crossed). hugs to all Phyllis