The FastDay Forum

Hi Phyl @mountainmystlike you said, its good to share our deepest worries..even if we cant think of a solution, airing them gets them out there instead of just going round in circles in our heads.

I understand yr DD worries...though my DD is married, an illness puts a big strain on the happiest of couples..and it does go thru my head,what would happen if it doesnt work out for her and her hub. She can only earn a small income from her freelance work,and i live in a one bed flat on a small income ( thanks for that, ME!) and tho she will always have a roof over her head while i' m on this earth,it would be such a squeeze if it came to that . I think too about her future children...not sure if thats ever gonna be a real possibility,and tho i wd do all i can to support her if they had a baby,i' m not getting any younger or weller. Her half bro had his two very young,before he got ill..theyre grown now so dont impact on his illness on a practical level.

I guess we have to have faith that things will fall into place, and in the absence of really knowing what the future holds,can only keep believing all will be ok ( ish) and we'll get by somehow.
Doesnt stop those middle of the night ( and middle of the day!) fears tho does it
Big hugs Phyl and Bean,i pray that a few years down the line,things may be rosier for us all,specially the younger ones X x
Ps Phyl, my daughter isnt starting LDN til she's finished her Uni work. Having seen the bad days ive had over the last four months each time ive increased the dose, she's right to wait i think x

Oh wow Candy! I think we must have bean writing at the same time. Two minds eh?

Yeh @nursebean just saw yr reply xx sending big hugs you way..

A day at a time is all we can do in this life xx
And yes Bean,quietly fasting but bean very hungry since i first woke about fourish...
Hope Min is ok now x

Good luck today Candy, on your backtoback marathon!! Go girl! xxxx

Thank you so much my fast friends@nursebean,@CandiceMarie. I really appreciate your understanding. You are absolutely right, all we can do is take each day as it comes and do the best we can. Most of the time I do that, but some days the fear just smacks me up side my head. . Talking to my friends who understand, really helps.
Beany, I know you and Deidre are in the same boat. And Candy, your D.D. also, with the exception of her being married. Deidre has now officially been sick for longer than half her life, and it gets a bit overwhelming at times. I keep holding on to the hope that the new research going on right now will yield a treatment. We all deserve a chance to reclaim the life we want, you young ones especially have the hope of that. Well, enough of my mini nervous breakdown:-)
How is your day going? I'm just getting started as no one else is up yet and today is basically still in the planning stages. Am I the only one that gets up every day with a list of things to do and when I try to do them my body goes"nope, not today":-) it's a fast day here and I'm still trying to decide what to cook. Nothing like leaving things to the last minute.
Beany, I think you are right about concentrating on the house for now. Once I get settled, I have lots of creative things I'm anxious to try. Do you do Pinterest? I see lots of ideas on there. Am looking forward to your art works.
Candy, hoping your day goes well. Try not to worry too much about you D.D. She is her mothers daughter, strong and resilient. And I think postponing the LDN until after school seems a sensible precaution. Glad you are feeling better after your dose increase.
Well, enough rambling from me. Sending a big hug and wishes for a bright day love, Phyl

Oh MM @mountainmyst i totally get that thing about things smacking you up x

Usually happens to me when i wake in the wee dark hours x x
thats heartbreaking about Deidre xx i pray there' ll be help soon, for the younger ones specially..
So hard on the them and seems so very unfair
At least i was middleaged and had lived a lot before i got ill
And YES isnt it frustrating that in our heads we're raring to go evey day and our bodies say no...Gah!!
Just makes me go..

Hey candy@CandiceMarie, where I'd you get the picture of me banging my head against the wall?:-) oh thank you so much for understanding what I was trying to say.
Yesterday was supposed to be a fast day. Deidre was feeling really sick yesterday, so we postponed until today, if she is feeling better. Probably did too much the day before.
My problem at the moment is the upper back pain. I think I have more energy and could actually do some things, if I could get the pain under control I'm working on inventing a device to hold an ice pack in place between my shoulder blades . Or see if I can catch that person that keeps sneaking up and stabbing me when I'm not looking.
I too am hopeful that our younger folks get a treatment soon. I don't know which is worse, to get sick when you are so young you don't get a chance to do so many things, like Deidre. Or be a bit older and have a life and career started, and so much within your grasp and have it all snatched away, like our dear Beany, and your D.D. IT's all just really unfair and maddening!!
I, for one am just thankful we found each other! And that despite it all, we still have our humor and humanity intact!
Love and squishy hugs to you and beanybops. Phyl

Thanks for those squishy hugs Phyl @Mountainmyst. How is Deidre now? Has she got rid of that horrible sticky feeling? There's nothing worse is.there.
Hope you've both had a better day today?
Had a good fast today...but still have a bowling ball for a stomach!!

Hope Deidre feels better today and that yr back pain goes Phyl ..sounds horrid specially coz in a place where as you say you cant get at! I wonder whats caused it..do you think its doing too much in the house :0(
I hope it goes soon or has already gone- even better!

Time for Candy to make some brekky xx!

Ooh Candy? What's for brekkie?!

Two slices of buttered toast x

Mmmmm bet that was yummy. Now? Whats for lunch?

Cuppa soup for me @nursebeanhen meeting DD for free coffee and cake (one shared between ys) courtesy of Mr John Lewis x
You fasting today Beano? X

Hi@nursebean,and@CandiceMarie, how are you today? I'm doing ok. The upper back thing is going to be a problem today though I think. Already I'm having pain,and tingling. Not a good sign when it starts first thing. Candy, it could be over doing, I know it I try to do too much it gets really bad, as in can't breathe because of the pain, and I do try to push through it and always regret it. You would think I would learn. the rheumatologist thinks I have something pressing on a nerve in my Thorasic spine. I have a large area that has greatly decreased sensation on the skin, rather like after having dental work when sensation is coming back, but so not normal. She says there is nothing to do for it. So, learn to live with it. I'm hoping the anti inflammatory effects of the diet will help eventually, steroids helped but don't want to take them too often. Well, enough of that.
Deidre is still not feeling well, but not having as much pain. Just fatigue and heart pounding when she tries to do things. We are experimenting with increasing the electrolyte solution. I made it yesterday with peach green tea, sea salt and a salt substitute. Needed much less sugar than our old recipe, and she can drink it better. We are hoping that will help. She has P.O.T.S. And it only gets worse in the summer, so we are working on solutions now before the heat arrives.
We are fasting today, salad for supper I think. candy, hope your time with your daughter is wonderful. Beany, are you fasting today? Hope it is going well, and don't worry about that bowling ball in your tummy, it will soon be a thing of the past. Love and hugs , Phyl

Hmm peach green tea Phyl?! Not sure I like the sound of that :0
I'm sending you and Deidre special Bean hugs because it sounds as though you're both really going through it at the moment. I hope you're not overdoing things. Mind you, we all do,it don't we. It's just human nature
I've certainly overdone it. Well I say that...I've dyed my hair a few times and it has now wiped me out! How ridiculous. I'm in bed now and just going to try and fill up a bit more with energy before attempting anything else.
Did I read that you too are fasting today Phyl? At the moment, it seems I'm all alone in the fasting today tent
Candy was around earlier. She always keeps me company even if she's not fasting! Incidentally, Candy...when is your next fast. Are you doing back to back again!!
Anyway, hope you both have a great day and I'll speaky soon. xxx